[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"achievement-su8T4wpGm_U":3,"tags-陳宥丞-20":17},{"id":4,"postUrl":5,"politician":6,"title":7,"type":8,"creationTimestamp":9,"description":10,"creationDate":11,"tags":12},"su8T4wpGm_U","https:\u002F\u002Fwww.youtube.com\u002Fwatch?v=su8T4wpGm_U","陳宥丞","【宥見暖心】爭取脊髓性肌肉萎縮症SMA用藥治療權益 │ 陳宥丞","youtube_video",1635422410000,"#脊髓性肌肉萎縮症SMA  #罕見疾病  #陳宥丞\n你能想像嗎？ 每天早上起床刷牙、換衣服、搭捷運上班上學、吃飯，這些我們習以為常的生活，某一群人卻需要花費一天中大部分的時間在這些「日常瑣事」上，當你的行動受到限制，是否還有懷抱夢想的可能呢?\n⠀\n影片中採訪了兩位SMA病友 #李怡潔 與宜萱，自幼至今的肌肉萎縮，雖然限制了她們的行動，但心靈卻沒有被打倒，他們樂觀開朗，也擁有夢想，並正朝著那條路一步一步的實踐。\n⠀\n他們不屈服於身體的不便及有限的生命，把每一天過得有價值💪無法選擇的疾病，使他們被迫勇敢去面對生活的困難以及醫療的受阻，#SMA治療藥物爭取協會（#台灣生命之窗慈善協會） 爭取用藥💊是一條佈滿荊棘的路，我們不能只靠SMA病友自己的努力，更需要整個社會看見他們，共同來解決問題。\n⠀\n特別感謝 #蔡壁如 委員和我們一起看見社會每個角落的生命故事!\n也希望大家可以多多分享，讓更多人認識脊髓性肌肉萎縮症~\n⠀\n#歡迎留言\n寫下你想了解的議題，讓宥丞來為你解答！ \n 📍宥丞社群傳送門，到以下找到我更多的日常\n宥丞臉書：https:\u002F\u002Fwww.facebook.com\u002FNtuyoyo\n我的IG：https:\u002F\u002Fwww.instagram.com\u002Fyouyou_cheng_chen\u002F\n —\n#宥見暖心 #SMA #肌肉萎縮\n#脊髓性肌肉萎縮症 #輪椅 #用藥\n#內湖南港 陳宥丞\n#港湖宥丞 服務有誠\n#服務電話  27936656\n#民眾黨港湖服務處（原黃珊珊團隊）","2021-10-28T12:00:10.000Z",[13,14,15,16],"公共衛生","政府監督","長照政策","公民權利",{"tags":18,"all":75},[19,21,24,26,28,31,34,37,40,43,46,49,52,55,58,61,64,67,69,72],{"name":14,"count":20},1063,{"name":22,"count":23},"政治文化",921,{"name":16,"count":25},788,{"name":13,"count":27},444,{"name":29,"count":30},"都市計畫",435,{"name":32,"count":33},"交通安全",304,{"name":35,"count":36},"司法改革",284,{"name":38,"count":39},"地方經濟",276,{"name":41,"count":42},"重大公共工程",258,{"name":44,"count":45},"體育運動發展",202,{"name":47,"count":48},"防災應變",191,{"name":50,"count":51},"環境保護",187,{"name":53,"count":54},"青年發展",181,{"name":56,"count":57},"教育與托育",147,{"name":59,"count":60},"勞工權益",139,{"name":62,"count":63},"居住正義",133,{"name":65,"count":66},"產業發展",112,{"name":15,"count":68},80,{"name":70,"count":71},"能源政策",64,{"name":73,"count":74},"動物保護",54,[19,21,24,26,28,31,34,37,40,43,46,49,52,55,58,61,64,67,69,72,76,79,82,85,87,89,91,93,95,97,99],{"name":77,"count":78},"性別平等",39,{"name":80,"count":81},"737市政陳情",2,{"name":83,"count":84},"意志力",1,{"name":86,"count":84},"刑事警察",{"name":88,"count":84},"詐欺罪",{"name":90,"count":84},"強制罪",{"name":92,"count":84},"恐嚇取財",{"name":94,"count":84},"警察局",{"name":96,"count":84},"刑事犯罪",{"name":98,"count":84},"消費權益",{"name":100,"count":84},"拒絕勒索"]